Giving Thanks (post is about two months behind)


Giving Thanks

It all starts with Team Jack. I’ll never be able to thank Team Jack enough. Team Jack is all the friends, family, and doctors that are there for me and my family as we fight CF. Thanks to my family who ensures I perform my therapies each and every day, stays up with my prescriptions, stocking my favorite foods – gummy snacks and apple cereal bars, washing my hands frequently. I cannot begin to list all the things you do for me, but thanks from the bottom of my heart. I’ll try to call attention to a few others…

I have to thank Mom and Dad’s friends who help to raise awareness and volunteer their time at various events throughout the US and who run meals to them at Children’s while I’m there. I like to thank the ones that have made and continue to make donations (no amount is too small).

I have thank family and friends for understanding the sensitivity of the disease and how cautious or “flaky” it makes Mom and Dad, so much so, we still hear from time-to-time, “I’ve yet to meet Jack” (sort of like that friend who swears his has a girlfriend but no one has ever seen her and she cannot be found on social media). I really do exist people and Mom and Dad aren’t crazy, well at least when it comes to reducing my exposure to colds, germs, and sickness.

Thanks to everyone who has gotten a flu shot. It won’t make you sick. That’s a myth. Google it.


Thanks to the doctors at Children’s National Medical Center for…uh…saving my life not once, but twice already with addressing the bowel blockages. Thanks to my Pulmonary Team who consistently monitors me and keeps Mom and Dad up to speed on the medical breakthroughs. Without them and other doctors CF would likely be seen as a pediatric disease. Also thank you for making the process of getting my Vest so easy and painless on Mom and Dad. The Vest procurement turned out to be the least troubling health insurance hurdle to date.

Thanks to my pediatrician for squeezing me in when needed and thanks for not forcing me to wait in the waiting room.

My early December checkup at Children’s went well. My team of doctors says whatever “it” is we’re doing is working and to keep it up!

Lastly, thanks to these guys!

Cleats for a Cause


Rarely appearing to understand its audience, the NFL got it right weeks ago with its Cleats for a Cause campaign. The NFL allowed players to express individualism which would otherwise result in uniform infractions where players are fined to wear custom cleats that support causes that are important to them.


Believe it or not, there were actually three players to sport cleats supporting the Cystic Fibrosis Foundation and raising awareness – Jarvis Landry (Miami Dolphins), Shaq Lawson (Buffalo Bills), and Charles Johnson (Minnesota Vikings). Seeing as there are 1,696 active players in the NFL at any given time, that’s roughly .18% of fall players bringing awareness. That’s not too shabby. It would be cool to see MLB and other leagues follow suit. Would love to see Trea Turner pick up the cause. I think it’s a natural fit with his number 7 and all (The seventh pair of chromosomes contains a gene called the cystic fibrosis transmembrane regulator (CFTR) gene.). The CF Foundation is conveniently located in Bethesda, MD. What do you say Trea?


Each player has reasons for why they chose to raise awareness cystic fibrosis. Charles and his wife were told by doctors that their daughter might have CF. Jarvis lost his “first love” to the disease at age 24. I’ve yet to find out how Shaq was impacted outside of supporting his “little brother Adam Roy”.


As you can see these cleats are pretty cool. Best of luck to these guys!

Thanks, I’m going to keep fighting cystic fibrosis as best as I can.

Bustin’ Out The Big Guns to Fight CF
Giving Thanks (post is about two months behind)

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