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Caps Practice

Dad’s softball buddy, Chuck, showed Dad a video of him and his son at Caps practice so Dad thought this would be a good activity to break up the monotony of Bama and Pop’s Daycare so Bama and Pop took me to watch last week. I watched as the guys skated around the ice. To be quite honest, Bama might of enjoyed the watching these young men skate around more than me. Haha.

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Big Fun

Mom and Dad’s friends continue to hook it up. The latest score was huge and has proven to be so much fun. With the cold weather right around the corner, the timing couldn’t be better. Kim and Darrell Smith (family friends of mom’s) thought of me as they were clearing out some of their awesome grandparent gear.

By far the prize in this stash are these big, foam blocks that are so big and nearly take up the entire playroom. I’ve already proven that falling off hurts still and have my first bruise from where I jumped onto Mom and we hit heads.

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They also gave us this cool slide/tower combo for the backyard which will be perfect when I don’t feel like trekking up to Madison Center in the cold.

Photo coming soon…

Poor Hayden, Feel Better

As you all know by now, my family and I are very close. This past weekend, Hayden tested positive for lower-lobe pneumonia. Since she was down in Lewes, DE with the rest of the family (including Bama and Pop) over the weekend, Mom and Dad don’t want to risk Bama and Pop having contracted the pneumonia and pass it along to me, since it would undoubtedly lead to my being hospitalized. Hayden was playing on their phones and watching shows so even Aunt Rae Rae feels this is the best approach. Dr. Shukla said if no symptoms present themselves after four days or so, we’re probably in the clear.

“Better Safe than Sorry”

But more on Hayden. She’s so sweet. Tomorrow is her seventh birthday and while I’m sure all she wants is to feel better now that she’s so sick, here’s her birthday invite to her friends.

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People like my cousin Hayden are what makes the world (our country) a better place.

This was 100% Hayden’s idea according to Aunt Rae Rae. The whole family talks about how hard she is to shop for, so I believe her. This shall also serve as a friendly reminder to all my friends and family to GET YOUR FLU SHOTS.

No Sitters ≠ No Fun

While I enjoy time and Bama and Pop’s Daycare, it’s been a nice change of pace and fun hanging out with Mom and Dad as they split up their work days – Dad 630AM-1PM and Mom 130PM to 8PM. Mom totally understands the necessity in splitting up the schedules in an effort to mitigate exposure to pneumonia but feels her and Dad’s relationship resembles…

“Two ships passing in the night”

So the strain on Mom and Dad’s relationship is sort of a byproduct that is often overlooked as well when understanding cystic fibrosis and it’s impact. That said, Mom and Dad handle it well and know it’s only a brief hiccup which they’ll be back to hanging out and eating dinner together in the evenings in no time.

Mom’s idea of fun was to take me to Target so I was able to get a few new trucks to play with and a new sweatshirt. She really likes this new line, Cat and Jack. Has a nice ring to it.

Dad’s idea of fun is to carry me (literally because he’s scared of germs) all around Pentagon City Mall to the Lids store to get a new hat since the previous one he got me is nowhere to be found and then to Whole Foods to get more of my favorite apple cereal bars. I was asleep on his shoulder for the Whole Foods trip so I only know we were there because he told me. The reason getting a hat was so important is because the Redskins hat Dad got clashes with all my clothes Mom puts me in and I need a hat to keep my head warm.

Yesterday Dad and I headed down to the Mall on his bike and ran around and played all downtown. It was a nice change of scenery. We saw the White House, Washington Monument, the Lincoln Memorial, and a few others along the way. We also saw many protesters, but I’m not exactly sure what they were protesting (they chanted this is what democracy looks like). Most appeared to be junior high students so Dad and I were quite confused. At least they didn’t damage any of the monuments like what occurred in New Orleans and other cities following the election.

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That’s the new African American Museum in the back, left.

Development Update

Totally sold myself short last time in terms of development. I can say so many words and do many more things than I previously disclosed.

Motor: I also love running, skipping, and jumping so I make for a very difficult subject to photograph. I have more hops than most of Dad’s buddies who he played basketball with when first moving to the area. I barely know what it’s like to walk because I’d prefer to just skip or run everywhere. I can get up and down stairs for the most part with little assistance (adults still stand nearby to ensure nothing too dangerous happens). I also can build tall Mega Blok towers though not quite as tall as Dad. I’ve also gotten a much better handle on my battery operated ATV and can ride it around the driveway/patio. I can kick balls. Lastly, don’t leave anything on a nearby table/counter because I’ll reach for it and if I cannot reach it, I’ll push a chair/stool over to grab it.

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On the run…

Words: Baba (Bottle), Baby, Ball, Bath, Birds, Bak (Bike), Buk (Book), Butt, Booger, Bye, Candy, Cheers, Cheese, Choo choo, Da-da (Dad), Eat, Elmo, Fish, Fist, Hat, Hi, Hot, Mama, Moo, Moon, More, One, See,  Sit, Socks, Shoes, Soap, Quirl (Squirrel), Steak, Stinky, Teeth, Truck, TV, Two, Up, Wawa (Water), Watch, Woof, Work.

I’ll also dangerously repeat words at the end your sentences and may/may not have been known to say “Shit”.

Names I know are Mama, Dada, Yi Yi (Riley), Pay (Paige), Hay (Hayden), Coco (Courtney), Bama, and Pop.

Social: I can feed myself most food – steak with a fork, yogurt by spoon, and gummy bunnies by hand. Drink my own bottles of water and milk. I’m not always an easy eater though.

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Cry, cry, cry

Cognitive/Understanding: In addition to doing “cheers” with my bottles, dad’s beer, and mom’s wawa (water) I know how to ask for “five” and “fist” (fist bump).

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Cheers!

I know where my ears, eyes, hair, nose, tongue, teeth, belly button, and pee pee are located. I also know if Dad heads down the basement stairs in the evening, he’s going to pop out next to the garage as he cooks on the grill or throws away trash so I run into my playroom (sunroom) to spy on him from up there.

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Happy Thanksgiving!

Hope I’ll see some of you over the holiday weekend and if not, I’ll try to update how mine was here on the blog.

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